The Union conference on lung health
My activist path started after I survived tuberculosis in 2015. During the 7 months in isolation in a TB hospital in Moscow, I created a series of paintings which tells the stories of people who shared my fate. The exhibition Hold your breath travelled the world bringing awareness and fighting stigma around TB. Half of the money I earned by selling these art pieces was donated to the cause of TB.
In 2016 I was one of the 20 representatives of different countries in Eastern Europe and Central Asia who founded TBpeople - a community group which grew into a global network of people affected by tuberculosis.
In 2017 I initiated my second big project. Tuberculosis and You is a a book about TB made by and for people affected by the disease with the support of some of the world's most renowned experts. At this moment the book is available in 13 languages. In 2018 I was invited to the UN General Assembly in New York, High Level Meeting on Tuberculosis to officially launch the English version of the book.
Currently, I speak at conferences and events on Tuberculosis, I give lectures to medical students, I visit hospitals around Russia and distribute the brochure, I consult patients online, and I showcase my artistic work to the global medical community, spreading awareness. I work with such organisations as WHO, International Federation of Red Cross and Red Crescent Societies, Stop TB Partnership, TB Alliance.
I truly believe we can eradicate TB from the planet, but stigma is the main obstacle in this fight.
I beat TB once, now stigma is my target.